| Brain tumors, cancer of the liver and ovaries are all | | | | important details! Get someone you know that is |
| considered rare cancers. | | | | skilled in Internet research to help you out with your |
| Stage 3 Brain Cancer Prognosis | | | | online research studies. |
| A cancer is considered rare if it is diagnosed in less | | | | How To Find Support For Rare Cancer Patients |
| than 15 people per 100,000 each year. This comes | | | | Many people diagnosed with a rare cancer often feel |
| out to a total of about 40,000 cases per year in the | | | | alienated and alone because there are so few people |
| US. For example, ovarian cancer occurs in about | | | | who share their same condition. It is difficult to find |
| 21,000 women each year, which means it is classified | | | | others who can relate emotionally to these people. |
| as rare. | | | | Most cancer patients find some sort of consolation in |
| Most rare forms of cancer in adults are grouped | | | | discussing their condition with others who have the |
| together in a larger classification. For example, | | | | same condition. Rare cancer patients have a difficult |
| leukemia is a general classification of several rare | | | | time finding others who have the same condition. |
| types of cancers that occur in the blood. | | | | In these cases, cancer patients may be able to find a |
| The common cancers such as lung, breast, prostate, | | | | sense of community through online means such as |
| and colon cancer attract much more attention and | | | | support groups and cancer forums or blogs. Enlist the |
| get much more research funding than the rare types | | | | help of someone who is skilled in Internet research to |
| of cancer. Of course this makes sense because so | | | | find these support groups and show you how to |
| many more people are affected by the common | | | | interact with them online. |
| cancers. | | | | Rare forms of cancer may actually be easier to treat |
| However, the common cancers may be caused by | | | | because they may have a single molecular genetic |
| many different factors - only one of which may be a | | | | flaw that is common to them. However, the difficulty |
| genetic predisposition. Many of the rare forms of | | | | lies in detecting these rare cancers early, properly |
| cancer can't be easily linked to environmental and | | | | diagnosing the rare cancer and then seeking the |
| other factors. Rare cancer research may be able to | | | | appropriate treatment. Because the cancer is rare, it |
| help scientists unlock the genetic codes which explain | | | | may be difficult to move through these phases |
| how humans get cancer. | | | | quickly enough. |
| Getting Clinical Care For Patients With A Rare Cancer | | | | Consider a Clinical Trial |
| The problem with a rare form of cancer is finding a | | | | Lung Cancer Secrets Revealed Click here |
| physician who is familiar with its diagnosis and | | | | When cancers grow in spite of treatments such as |
| treatment. Because these cancers don't happen as | | | | chemotherapy, radiation therapy and surgery, it may |
| much as the common cancers, most physicians don't | | | | be time to consider other alternatives such as clinical |
| have experience in diagnosing and treating these | | | | trials. Cancer treatments must go through clinical trials |
| cancers. | | | | before they are approved for use with the general |
| In order to get appropriate treatment for a rare | | | | population. You can choose to be a clinical trial patient |
| form of cancer, you may have to continually ask | | | | and help advance cancer research to find a cure. If |
| your oncologist for answers. You may have to learn | | | | you choose to become a clinical trial patient you will |
| how to do the research yourself and even travel to | | | | have to sign waivers for risk. Weigh the risks |
| see other doctors who specialize in an area of | | | | carefully! |
| research similar to your cancer. Don't be surprised if | | | | Get Insurance Guidance |
| the medical advice you get seems conflicting. | | | | Rare cancer patients often face insurance hurdles. |
| Because these cancers are rare and the research | | | | Ask about insurance issues when you visit your |
| may be limited, the science behind the treatments | | | | oncologist. Some insurance plans require pre-approval |
| may vary widely. | | | | before they will pay for a treatment of a rare |
| Don't worry about offending your doctor by asking | | | | cancer. Without such pre-approval you and your |
| for a second opinion. Remember these cancers are | | | | family may be stuck with a huge financial burden as |
| rare, and most physicians will have little experience in | | | | well as the burden of care. |
| dealing with them. It is OK to ask for a second | | | | Keep careful records of all interactions with your |
| opinion. Some insurance companies may even require | | | | insurance company. Document the time, date, the |
| a second opinion in the diagnosis of a rare cancer. | | | | representative(s) you spoke with and the results of |
| Seek a referral to a nearby "major" cancer treatment | | | | the conversation. Request for written approvals and |
| center because this will increase your chances of | | | | do as much communicating as you can in writing |
| consulting with a specialist who is more familiar with | | | | instead of verbally. Make audio or video recordings of |
| your cancer type. Major cancer treatment centers | | | | your conversations (ask for permission first!) with |
| are usually located in large metropolitan cities. You can | | | | insurance representatives. |
| usually find out more about these centers by | | | | If you can't afford treatments there may be patient |
| researching online. | | | | assistance programs that can help you. These |
| Take copies of your medical records with you and | | | | programs are often referred to as "compassionate |
| bring someone along to help you take notes of the | | | | care" programs. Ask about these with your |
| your conversations. You don't want to miss any | | | | oncologist. Be persistent and firm and don't give up! |